The Color of Health:
Reaching
into the past to heal the present
Griots
– The Jillikea – Singing men. Writer Alex Haley introduced the American public
to these fascinating oral historians – the keepers of black history with the
landmark television series, Roots in
1977. Famed writer and scholar, W.E.B. Dubois, became known as a
symbolic griot in the “New Century” when he kept the state of black health – the
color of health – as a prominent American question. Confident that race directly
affected health status, Dubois charged that the genetic beliefs and cultural
practices dramatically contributed to the alarming disease and death rates of
American blacks. He believed the complex interplay of these factors began during
the Middle Passage, the era where The Color of Health
begins.
The Color of
Health opens with a prominent
African-American woman celebrity standing on a large golden disk in the middle
of the African Burial Ground Memorial in New York City. Traditional Gambian griot music plays in
the background as she recounts how the ornate landmark in the shadow of the
Ted Weiss Federal
Building covers what was
once an unknown cemetery of crusty soil, African artifacts, and the remains of
an estimated 20,000 enslaved Africans. She further relates how finding over 400
skeletons during construction of the Weiss Building spawned passionate arguments
regarding the necessity of preserving the memory of the lives, health and deaths
of the African’s interned there.
Against this compelling backdrop, she invites viewers to
journey with her across five centuries as she, the documentary’s narrator or
“ceremonial griot” unfolds the turbulent story of the The
Color of Health: Reaching into the past to heal the present.
The narrator is standing in front of a
Museum display of a golden Sankofa, a mythical, backward-looking bird with an
egg in its mouth. She explains that
the documentary will use the African concept of Sankofa, the idea of reaching
back into the past to physically, socially, culturally, historically and
spiritually heal the present and future generations of African Americans. By exploring the path we have taken we
can help understand today’s African American health crisis.
Structure
The Color
of Health is
comprised of six 12-15-minute event-driven “chapters”. Narration, interviews, and
biography/journal entries are strategically intertwined with archival photos,
artwork, film footage and emblematic African-American, American and classical
music, i.e. such as the spiritual “Sometimes I feel like a Motherless
Child”. Pertinent historic and
contemporary quotes along with image-rich, thought-provoking poetry will add a
resoundingly visceral and memorable quality to each of the chapters.
Chapters
Chapter
One: “Shades of Meaning: “What Does it Mean to Be Healthy in America?”
Chapter
Two: An Unequal Burden of Pain: Bad
Medicine, Bad Science, Slave Medicine and the Slave Health Deficit;
Chapter
Three: “We Can Do
it Ourselves: The Birth and Death of the National Negro Health
Movement”
Chapter
Four, “We Were
Only Cadavers: The Tuskegee Experiments – 1932 to
1972”
Chapter
Five, “Lift Ev’ry
Voice: The Health Disparities Movement, the New Civil Rights
Movement”
Chapter
Six, “What Do I tell My Children Who Are Black:
The Psychology, Politics and Image of Black”
Shades of Meaning: What Does it Mean to Be
Healthy
Chapter One: “What Does it
Mean to Be Healthy in America?
”
This
chapter involves discussion of what it means to be an American citizen,
particularly a healthy American citizen.
The chapter opens with our narrator strolling down
a quiet, historic street in Albany, New
York. Soft period music from the early 1600s, the year
of the founding of Albany, plays behind her.
NARRATOR:
Welcome to
Albany, New York, America’s oldest chartered city. An
Oregon-based research firm ranked the city as America’s least
stressful city in which to live.
But what does this kind of ranking
really mean? Could it be that people in Albany are more relaxed? Or does the absence of
significant stressor mean they are healthier than residents of other cities?
Scientifically, the answer is no. In
fact, America’s healthiest
city is not Albany, New
York, but nearly 3000 miles away in Silicon
Valley. San
Jose, California.
Our narrator standing in front of the historic
Cathedral Basilica of Saint Joseph, the site of
San Jose’ first
mission. The sacred missions music of Mexican composer, Francisco Lopez
Capillas, plays behind her.
NARRATOR:
Wyeth Company,
the makers of Centrum vitamins and other researchers found that San Jose, also
noted as America’s safest city, had residents with a just-right mix of good health, regular exercise, a
healthy outlook, and nutritious eating to cause this world-class city to be
America’s healthiest. But would
black San Jose
residents agree? Since the survey used only public data and not warm bodies, we
may never know. But of one thing, we can be sure. Since America’s
founding, its African-Americans residents have historically become sick or have
died more frequently than American whites. Especially those who were slaves. So
let’s return on the wings of the Sankofa to the African Burial Ground for a
moment.
Our narrator is standing in front of the
“Unearthed” bronze sculpture located in the Ted Weiss
Federal Building near the Memorial. She looks at
the faces rendered in the sculpture, that of a male and two female slave .
NARRATOR:
They look so
alive, don’t they? Humph. Too bad we’ll never know their names. (She turns to the camera).
Many of the
skeletons of men and women like these were found at the site riddled with signs
of disease and infection. And unfortunately their deaths to diseases like
dysentery, malaria or typhoid fever were not the exception, but the
rule.
There is great scientific and
historical evidence to support the obvious, the traumatic, brutal rigors of
slavery seriously hindered the health and life quality of enslaved Africans. A
fact that leads us to the following questions. “What does good life quality entail? Is
it shaped by where a person lives or works? What he or she does for a living? Is
it shaped by leisure activities or habits? Or, to get directly to the point, is
a person’s life quality or health status shaped by race? The color of their
skin…
Interviews with experts will address these and
other questions.
Daniel Stokols, Ph.D. - Social Ecologist, School of
Social Ecology, UNC-Chapel Hill, Co-editor of Promoting Human Wellness: New
Frontiers for Research, Practice and Policy;
David Satcher, MD. – Former U.S. Surgeon General,
and current Director of the National Center for Primary Care at Morehouse School
of Medicine;
David R. Williams, Ph.D – Medical Sociologist,
University of Michigan Institute for Social Research;
Linda Clayton, MD, MPH – Senior Research Scientist,
Harvard School of Public Health, and co-author of American
Dilemma.
An Unequal Burden of Pain: A Brief
History of African-American Health
Chapter Two, “Bad Medicine, Bad Science: Slave Medicine and the
Slave Health Deficit”
The chapter opens with our narrator standing on the
grounds of the Charles Pinckney Plantation (also
known as Snee Farms) on South Carolina’s
Sullivan
Island. The plantation main
house can be seen just beyond her. She is listening to the vocal version of the
spiritual “Sometimes I feel like a Motherless Child” playing in the background.
NARRATOR:
Have you ever
heard a song that just speaks to your core, your soul’s experiences or those of
your family? Now imagine if that song, that haunting, plaintive wail, was your
mother’s voice. The way she sounded or her actual words before you and other
members of your family were stolen away from her. Never to see her, your family,
your home or your birthplace again.
African-American spirituals such as
“Sometimes I feel like a Motherless Child” are a perfect reminder of the
dislocation, the sense of fear and loneliness enslaved Africans felt upon
reaching American shores.
Welcome to Sullivan Island in South Carolina. Known as the “Ellis Island for
Blacks”, Sullivan is where 40% of all enslaved Africans landed and were
quarantined before being sent to America’s mainland to work on a
plantation like this one.
Here, on Snee Farm and countless
others, enslaved Africans by the millions were forced to live after being ripped
away from their homeland. Many of them, distraught and heartbroken, mentally
distanced themselves from the pain, turning inward or retreating to folklore,
loved ones, spirituality, escape, or in the worse cases, suicide to cope and
endure. Others became physically ill. Some even used available herbs and ancient
rituals to heal the sick. But the slave doctor or kitchen physick, as they were
known, weren’t the plantation’s sole healers. There were others – plantation owners,
overseers and local doctors who used bad science to target unhealthy slaves for
inhuman research.
One of worst perpetuators of bad
medicine was the father of Gynecology, Dr. J. Marion Sims. It is a
quintessential story of power and pain that Americans and modern medicine will
never forget.
A mini-profile and discussion of J. Marion Sims, MD, the
“Father of Gynecology”, founder of Woman’s Hospital of New
York, and his research on slave women, Anarcha and
her two peers will follow and may include the following sample
narrative. Classical music from the 1845-1850
period should play beneath the profile segment.
NARRATOR: …Doctors in
antebellum America claimed and believed blacks had physiological and anatomical
features - small brains; thick skin; high tolerances for heat, sun and pain -
that made them well suited to be not only be slaves, but medical research
subjects. Their faulty assertions spur African-American mistrust of the medical
system even into the 21st century…
Commentators to address the bad medicine, bad science issue
during this chapter include: Michael Byrd, MD, MPH – Senior Research
Scientist, Harvard School of Public Health, and co-author of American
Dilemma; Todd Savitt, Ph.D. - Medical Historian, Brody School of Medicine,
East Carolina University; Deborah Kuhn McGregor, Ph.D., Historian and Professor,
University of Illinois-Springfield and author of From Midwives to Medicine:
The Birth of American Gynecology; and Sandra Gadson, M.D. – President of the
National Black Medical Association or its assigned
historian.
Chapter Three,
“We Can Do it Ourselves: The Birth and Death of the National Negro Health
Movement”
The chapter opens with our narrator in sitting
at a huge antique desk in the bright yellow den of “The Oaks,” the elaborate Queen Anne
style home of Booker T. Washington. The Oaks is located at the Tuskegee
Institute National Historic Site in Tuskegee, Alabama. As she sits at the desk she slowly
turns pages of a book of clippings covering Washington’s life, and stops at an elegant
photo portrait of him. As the camera zooms in on the photo the medley “Roll
Jordan Roll/I want Heaven to be Mine” by the Tuskegee Institute Singers or a
like song plays behind her. To follow is a sample of possible
narration.
NARRATOR: Booker
Taliaferro Washington. Some know him as an educator and
founder of Tuskegee Institute now Tuskegee University, a historically black college located in
Tuskegee, Alabama. Others may know the former slave as a
civil rights and public health activist who founded not only an esteemed
college, but America’s first African-American
health promotion and health protection movement. The National Negro Health
Movement.
Long before its founding in 1914, a year soaked with over
50 African-American lynchings in the Black belt, Booker T. Washington and his
personal physician, Dr. John Kenney, realized there is a strong relationship
between positive health status, socioeconomic status and the life quality of
blacks. And that link was community. Organized community: schools, churches,
businesses, professional and civic groups, medicine, public health, private
citizens, and mass media uniting to develop programs to kill exorbitant disease
and death rates in the black community.
But this linking together of the professions, clergy and
John Q. Public to protect the color of health had unique and telling
challenges….
The chapter continues with our narrator introducing viewers
to the successes and setbacks of the Movement, and how since Washington died a
year into it, he wasn’t privy to seeing the Movement and the fullest impact it
had on black America for 30 plus years.
Commentators for this chapter include: W. Fitzhugh
Brundage, PhD, Historian, Department of History, UNC-Chapel Hill, and editor of
Reconsidering Booker T. Washington and Up from Slavery; Shawn Bediako,
PhD, Community and Social Psychologist, Department of Psychology, University of
Maryland – Baltimore; Susan L. Smith, Ph.D. – Historian, University of Alberta,
author of Sick and Tired of Being Sick and Tired: Black Women’s Health
Activism; and David Barton Smith, PhD, Health Policy Researcher,
Department of Health Administration, Temple University, and author of Health
Care Divided: Race and Healing a Nation.
Chapter Four, “We Were Only Cadavers: The Tuskegee Experiments –
1932 to 1972” - This chapter explores issue of racism in medical
research.
The chapter opens with our narrator standing in
Sweet Pilgrim Cemetery in Macon
County, Alabama at the gravesite and
headstone of the last Tuskegee Syphilis Study survivor to die, Ernest
Hendon. The camera zooms in on the headstone so the viewer can see its writing,
then zooms out to a medium wide shot of our narrator who holds a single rose in
her hands. Potential narration follows.
NARRATOR: In cemeteries like this one across
the South lay the graves of more than 400 black men who once lived and loved and
worked in Macon County,
Alabama. Men like Ernest Hendon, a
patient in the infamous Tuskegee Syphilis Research Study.
Managed by Eunice Rivers, a black
nurse, the Tuskegee experiments serve as one of the worst examples of pride,
racism and deceit in American and international medicine.
But how did such a devastating loss of
life and innocence occur? And who should be held responsible? Nearly 400 men
infected with syphilis were deprived of proper medical treatment for 40 years
until they were only cadavers. Was it the U.S. government
who funded and staffed the study? Or Nurse Rivers who knew the study’s real
intent and recruited 600 unsuspecting men into anyway? Or frankly, do we blame
the dead? Poor, uninsured men like Ernest Hendon who believed in free,
“compassionate” health care? Health care that promised to treat and bury them
with dignity?
In 1996, the University of Virginia sponsored a five-hour symposium
that posed these and similar questions. The lectures given were so provocative
and timely they led to the creation of a committee to investigate how
America could unearth and publicly
address the lasting impact of the experiments 24 years and 400 plus lives after
they ended.
This chapter will continue with discussion of how the
Experiments had an indelible impact on national Black health status and the
contemporary Health Disparities movement, particularly in light of the study’s
implications for the AIDS epidemic in black America, the development of the
controversial Institute of Medicine Unequal Treatment Report, and the fact that
the health disparities movement has burgeoned into America’s newest civil rights
movement.
Commentators for this chapter include: Fred Gray, Civil
Rights Attorney and attorney for Hendon and fellow survivors, and author of
The Tuskegee Syphilis Study: The Real Story and Beyond; Vanessa
Northington Gamble, MD, PhD - Medical Historian, and Director of the Tuskegee
University National Center for Bioethics in Research and Health Care; and
Stephen Thomas, Ph.D. – Director of the Center for Minority Health in the
University of Pittsburgh Graduate School of Public Health.
No
Ways Tired: The
Color of Health Today
Chapter
Five,
“Lift Ev’ry Voice: The Health Disparities Movement, the New Civil Rights
Movement”
This chapter opens with our
narrator standing on the Tallahatchie
Bridge in Tallahatchie, Mississippi
overlooking the Tallahatchie River. Bob Dylan’s “Death of Emmett Till”
plays softly underneath.
NARRATOR: In 1955, the murder of
14-year old Chicagoan Emmett Till spurred the Civil Rights movement, as we know
it historically. A 15-year period steeped in sit-ins, burnings, billy clubs and hoses, and
blood. Red, viscous, noble, innocent blood. The blood of Emmett Till; Martin
Luther King; Viola Luizzo; Schwerner, Chaney and Goodman… The blood of Malcolm
X, John F. Kennedy, Robert Kennedy. The blood of the thousands and thousands of
nameless…Today
the Movement in which so many rights were gained including the right for
African-Americans to feast unfettered and comfortable, proud at
America’s massive table, has become
an impassioned quest for another set of rights. The right to good healthy and
longevity among them.
Yet rights to protect the
color of health cannot be attained by laws alone. They are result of changed
behavior. Strategic behavior that health professionals, health activists and
African-Americans create, support and engage in. And even then, like at the
crest of America’s first Civil Rights
Movement, there are some who live among us who disagree….
Commentators
for this chapter include: Clovis E. Semmes, Sociologist and professor of
African-American Studies, Eastern Michigan University and author of Racism,
Health, and Post-Industrialism: A Theory of African- American Health; Thomas
Perez, JD, MPP, University of Maryland Law School and co-author of the IOM’s
Unequal Treatment report; Nathan Stinson, director of Meharry Medical College’s
National Center for Optimal Health and former director of the U.S. Department of
Health and Human Services Office of Minority Health; Maxwell Gregg Bloche, Professor of Law; Co-Director,
Georgetown-Johns Hopkins Joint Program in Law and Public Health and writer for
New England Journal of Medicine’s article on IOM controversy; and Sally Satel,
MD Psychiatrist, Commentator and Author of How Political Correctness is
Corrupting Medicine
Chapter Six, “What Do I tell My Children Who Are Black: The
Psychology, Politics and Image of Black”
The chapter opens with our narrator walking
amongst and studying the exhibits located in Big Rapids, Michigan’s Jim Crow Museum of Racist
Memorabilia on the campus of Ferris State
University. The sound of a
poet reciting significant lines of the Margaret Burroughs poem “What Shall I
tell my children who are Black”
plays underneath for a few moments before she
begins.
NARRATOR: Racism in
America has many forms, many
insidious, popular manifestations. Such as the items displayed here at the Jim
Crow Museum of Racist Memorabilia. Mammy cookie jars; degrading bumper stickers;
bug-eyed, big-lipped dolls, Ku Klux Klan paraphernalia… Researchers and
psychologists are more aware than ever that black health status, the color of
health, is impacted by a psychology of “blackness”. The fact that the stigma of
dark skin, African features; a fear of black pride; and the reality that
African-Americans have long mistrusted modern medicine, has an untold impact on
health and health care delivery. And the psychology, particularly as it relates
to a terrifying gap between black and white health statuses, if left
unaddressed, threatens African-America’s future….
Once select chapter commentators
speak to above issues, the chapter shifts locations and closes with her sitting
in a nursery of what was once the first black hospital in the Nation, Chicago’s Provident Hospital. The Curtis Mayfield song “I had
a Choice of Colors” plays behind her. She cuddles a black infant in her arms.
NARRATOR:
This child and
others like him are the hope of this country, and it is up to all of us to
assure our tiniest citizens will have the brightest and healthiest future
possible. America, black or white, yellow or
brown, cannot survive without them.
Ready to do your
part to protect the color of health? Health and medical practice changes and
lifestyle changes are best ways, the only ways, to prevent illness and early
deaths in the black community. This baby, this precious baby girl, the mother of
generations in years to come, is depending on it. (Our narrator gently turns the
baby’s face toward the camera a bit.)
Look into the camera sweetie. Yeah. That’s it. That’s it. I’m (narrator name here) for The Color of
Health. Can I, I’m sorry honey, I mean, we, yeah, (she kisses the baby lightly
on the cheek and smooths her hair) count on you?
Commentators for this chapter
include: Ronald Hall, PhD, Professor of African American Studies, Michigan State
University, and co-author of The Color Complex: The Politics of Skin Color
among African-Americans; and Senator Barack Obama,
Democrat-Illinois.
END OF
FILM
*
As an added method of extending the viewers learning beyond
initial screenings of the completed film, a Color of Health web site will
be developed to circulate information on its topics and the production. A
production journal, news releases, video clips, a guest book, and other
pertinent data will be posted for use and downloading on a general basis. This
educational device will serve as yet another method to convey that the
information shared within The Color of Health can be used to change the
life quality of all populations, and ultimately lift them to a healthier state
of existence cross-culturally and throughout humankind.
Treatment Prepared by Karen S. Williams, B.S.J., M.A.,
M.A.,
Bioethicist and Color of Health Writer/Researcher